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This is a very sad post.
The foundation for MOST ALL Dysautonomia patients include a drug called ProAmatine. When you are diagnosed with Dysautonomia, ProAmatine is the first prescription written for you. It works on the tiny blood vessels through out the body, by stimulting them to contrisct and raise blood pressure.
The FDA is pulling ProAmatine -a life line for so many patients- off the market as of September 2010. This is devestating news for thousands of Dysauotnomia patients. The FDA's reason for the pull is that the drug company, Shire Laboratories has failed to conduct a study proving its long-term benefits.
I am a rare paitent that cannot tolerate Proamatine. (Something that is a blessing at the moment.) I am worried for so many, many friends and strangers, alike, who are frantic about how they will manage without this medication. This medicine helps a so many people!
My heart is breaking for them all.
Will you join me in prayer? Please pray that there will be someway that these Dysautonomia patients will not have to go without this medication!
"When two or three come together in My Name, there I am with them."
Matthew 18:20
1 comment:
Dear Lord:
Heather and I come before you with this great need for all patients with this disorder. We ask that you open doors for those who will be in trauma over this decision. We ask that you speak to the hearts of those responsible for this decision and bring about change for those who depend upon this medication. We ask this out of Your grace for these patients and their families.
In the name of Jesus, AMEN
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